What is Spina Bifida?
Spina Bifida is a congenital disability that occurs when the spinal cord, comprised of nerves and fluid, doesn’t form correctly during pregnancy and presents outside of a child’s body. The more severe spina bifida cases can cause issues like lack of bladder control, leg paralysis, walking or mobility problems, orthopedic complications, and hydrocephalus.
What issues do children with Spina Bifida face?
LIFE-THREATENING
What makes spina bifida life-threatening are the spinal nerves and tissues exposed, leaving the baby vulnerable to infections. The more severe spina bifida cases can include orthopedic complications and hydrocephalus.
STIGMA
Children and their families often experience discrimination, leading to poor self-confidence and isolation.
DEVELOPMENTAL DELAYS AND COMPLICATIONS
Children may experience a delay in meeting milestones like sitting, mobility, and challenges with bladder control.
How does Spina Bifida surgery change a
child’s life?
Surgery closes the wound and prevents infection, preserving the spinal cord and nerves that are exposed outside of the body.
Hope is restored as children and families are welcomed back into the community.
With physical and educational therapies, children can attend school and participate in community life.
