What is Encephalocele?

Encephalocele is a congenital deformation of the brain and spinal cord during pregnancy, where the spinal cord doesn’t properly close. This results in a large sac of brain tissue and spinal fluid protruding from an infant’s head exposing and making vulnerable crucial parts of the nervous system.

What issues do children with Encephalocele face?

DEVELOPMENTAL DELAYS

Neurological impacts include mental disabilities, delayed growth, lack of coordination, and loss of motor function

STIGMA

Children and their families are often ridiculed or excluded from community life and activities, leading to isolation

LIFE-THREATENING

Encephalocele can be life-threatening if not treated

How does surgery change a
child’s life?

The visible tumor or exposed tissue is resolved and neurological conditions caused by brain swelling and excess fluid can be reduced

Parents and children experience hope as they are accepted into community life

Depending on the location of the encephalocele, prognosis after treatment is favorable

Miracles happen every day at CURE Children’s Hospital of Uganda

HOW RICHARD OVERCAME ENCEPHOLCELE

Margaret spent more than a year seeking help for her son’s growing tumor. When someone told her about CURE Uganda, she came right away. Baby Richard received a warm welcome and successful surgery. Margaret says, “I had lost all hope. I needed help for my son, and I got more than I expected!”